In my last blog you read about special friends. I have the most amazing and supportive friends and family who help us out a lot, but there are two of my best friends who we really couldn't live without, Faye and Angel. They are the most amazing couple and most amazing friends. They are not only my friends but their like family. I've never met anyone as selfless or more willing to do anything they can to help other people. They make me smile every time I see them, laugh when I

So this special journey were on brings such highs and lows everyday. When I think we've had a rough week with seizures and no sleep I then look around and see we're not suffering as much as others we know. Having a child who has a life limiting condition is hard because along with it we meet other children who are more vulnerable than Ethan, families who are suffering every single day, families whose children don't make it through, children who are put through pain every sing