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Our Linked Charities


Although Ethan's condition is extremely rare, so there are no charities specific to ARX, however his symptoms and abilities are reasonably common, meaning that there are a number of charities that Ethan and we as a family can make use of.

We have felt so blessed over the past 7 years of just how much support we have received from our friends and families, but we have felt just as blessed by the work that these charities have performed in order to make our lives that little bit more comfortable.

Please take time to explore each of these charities so that you can fall in love with them as much as we have. Why not follow them all on social media and help to do your part in spreading the awareness of what they tirelessly work to achieve.

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