Ever seen one of these before???
No?? Then you are incredibly lucky. This is the plan for what we want to happen for Ethans end of life care and for medical treatments throughout his life.
We hope that we never have to use it but it's important to have it all written and recorded incase the time comes that we do need to use it.
Unfortunately children with life limiting disorders, means just that, a limited life. We have never been given a life expectancy with Ethan but w