So this morning started with Ethan having a seizure. When Ethan has a seizure after 5 minutes he can have a shot of midazolam. After a further 5 minutes if the seizure hasn't stopped he can have another shot. After a second shot an ambulance has to be called. Today's seizure stopped on the tenth minute narrowingly missing needing a second shot. Whilst midazolam is a very effective drug and stops the seizures it comes with its down falls. It makes Ethan very sleepy to start wi

Ethan has scoliosis. This means his spine is slightly curved. It's not something you immediately notice as Ethan doesn't sit or stand unaided, but when he is being held in a sitting position you really can notice it as his back curves out to the right. Ethan also has "frogged" legs! This means that when lying or sitting Ethan's legs flop down to the side in the same shape as frogs legs! Hard to describe. Ethan has had some scans done on his hips to check the joints as he does