Advanced Care plan
Ever seen one of these before??? No?? Then you are incredibly lucky. This is the plan for what we want to happen for Ethans end of life...
Packing for the hospice
1. Medicines This is the most important thing to remember when we go away. Anything else we can mostly replace or get by without, but...
The face of exhaustion
The last four weeks have been mentally, physically and emotionally draining. I've gathered a lot of bits for my book! But in all...
New Bedroom
We decorated Ethans room last weekend. His was the first room to be done in the house. We moved for this special man so it was only right...
A year since our lives changed
We can't quite believe that we have been in this perfect home for a whole year. To this day I've still not found one problem to living...
Make a wish weekend
Last year we started planning for Ethans wish. Life is so unpredictable for Ethan so we wanted to create memories that we could treasure...
Be prepared
When I was younger I was a brownie and then a girl guide. Our motto was always "be prepared". Now this is something I've carried on...
A Special Needs Christmas
Do you ever struggle for ideas for what to buy your child with special needs? I always get excited about it, so I have compiled a list of...